We have experienced first-hand the life-altering consequences of having a rare, genetic disorder.
And we know that answers to everyday questions are hard to come by: Should I be taking certain medications? How can I safely have children of my own? What is pre-implantation genetic diagnosis? How can I explain the risks to my significant other? What do I need to know about insurance coverage?
Like many of you, we've consulted with dozens of specialists, and tried to find our way through the confusing maze of our healthcare system. We have had to educate many medical professionals about our genetic history, and have always wished we could connect with a genetic specialist whose job is to help us through the process.
At the same time, technology is making information easier than ever to access – but, while online patient forums provide important emotional support, they aren't sufficient. We wanted to give patients and families access to experienced specialists who were trained at the best hospitals in the country.
If you're interested in learning more, please tell us about yourself above, and we will keep you in the know as we launch.
Connect with a licensed geneticist.Genetic conditions are complicated, and difficult to navigate. We want to help you understand your condition and get the answers you need.
Fast Answers.Don't wait days or months for an appointment.
Mobile Friendly.Manage your health like any other aspect of your life -- efficiently, on-the-go.
Specialized Expertise.Having the right information from the best specialists can alter your life decisions.
